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One of the most exciting parts of running a foundation is watching an idea slowly turn into something real. Right now, we are in the early stages of planning our annual Cruise-In fundraiser, and the excitement in our family and our team is growing every day. Planning an event like this takes a lot of work behind the scenes, but it also brings something even more powerful—community. Over the past few weeks, we have started organizing details, reaching out to sponsors, and buil

Last week our family had the opportunity to travel to Washington, D.C. for Advocacy Day with the National Fragile X Foundation. It was an experience that reminded me why we started the Solomon’s Strength Foundation in the first place. Advocacy can sound like a big, complicated word. But when you’re the parent of a child with Fragile X syndrome, advocacy becomes something much more personal. It means making sure lawmakers understand that behind every policy decision is a real

Embracing the Unknown Fragile X syndrome is something many families have never heard of—until it becomes part of their story. For us, the diagnosis arrived with fear, confusion, and an overwhelming sense of the unknown. We didn’t just receive a medical term; we were handed a future we didn’t yet understand. What we’ve learned since then has reshaped how we see our child, our family, and our purpose. What is Fragile X Syndrome? Fragile X is the most common inherited cause of i

There’s a moment at every community event when you realize something profound: you’re not alone. That moment happened for our family at this year’s Cruise-In for a Cause , but it wasn’t just about the cars, music, or sunshine. It was about the extraordinary connections we made  with other families navigating life with Fragile X syndrome and related developmental disabilities. As we welcomed families to the event—parents, siblings, grandparents, and caregivers—we heard stories

When we first received Solomon’s diagnosis, our world shifted in ways we never expected. Learning that our child had Fragile X syndrome , a developmental disability that affects learning, communication, and daily life, was overwhelming. Fear, uncertainty, and questions about the future filled our days—and yet, even in that moment of vulnerability, we also felt a spark: a determination to do everything we could to support Solomon and families like ours. Solomon’s journey has b

When people ask about Solomon, one of the first things I mention is his therapies. Not because they define him—but because they support him. They help him communicate, regulate, move, and grow in ways that don’t always come naturally for a child with Fragile X syndrome. Therapy is part of our normal. Our weeks are built around appointments, routines, and small victories that might go unnoticed to others but mean everything to us. Speech Therapy Speech therapy has helped Solom