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There are moments when navigating Fragile X Syndrome and autism feels uncertain. Not because we don’t have hope—but because we don’t always have clear answers. As a family living with Fragile X Syndrome and autism, we’ve learned that progress doesn’t always look the way you expect it to. Some days feel like big steps forward, and others feel like standing still. But even in those moments, growth is still happening—it just looks different. Families navigating developmental dis

Starting something new for your child is never simple—especially when it involves intensive support like Applied Behavior Analysis. This June, Solomon will begin ABA therapy, and if I’m being honest, I’m stepping into this season with a mix of nerves, questions, and cautious hope. As a parent, you want to make the right decisions. You research, ask questions, and try to filter through opinions that can be all over the map. ABA therapy is one of those areas—highly structured,

As the weather warms up, so does the momentum behind Solomon’s Strength Foundation . This time of year marks more than just the return of car show season—it signals the start of something much bigger. Behind the scenes, we are hard at work preparing for our 3rd Annual Cruise-In for a Cause , and every detail is driven by one clear mission: helping families access life-changing service dogs. Why This Year Matters Even More This year, our focus is sharper than ever. We are acti

This photo just came in the mail—and it stopped me for a moment. Not because it’s perfect, but because of what it represents. It represents showing up.It represents using our voices.It represents advocating for families like ours. In this moment, we were standing with Senator Todd Young , talking about the real needs facing individuals with Fragile X and their families. But what you don’t see in this picture is everything happening around it—the ongoing conversations, the p

One of the most exciting parts of running a foundation is watching an idea slowly turn into something real. Right now, we are in the early stages of planning our annual Cruise-In fundraiser, and the excitement in our family and our team is growing every day. Planning an event like this takes a lot of work behind the scenes, but it also brings something even more powerful—community. Over the past few weeks, we have started organizing details, reaching out to sponsors, and buil

Last week our family had the opportunity to travel to Washington, D.C. for Advocacy Day with the National Fragile X Foundation. It was an experience that reminded me why we started the Solomon’s Strength Foundation in the first place. Advocacy can sound like a big, complicated word. But when you’re the parent of a child with Fragile X syndrome, advocacy becomes something much more personal. It means making sure lawmakers understand that behind every policy decision is a real

Embracing the Unknown Fragile X syndrome is something many families have never heard of—until it becomes part of their story. For us, the diagnosis arrived with fear, confusion, and an overwhelming sense of the unknown. We didn’t just receive a medical term; we were handed a future we didn’t yet understand. What we’ve learned since then has reshaped how we see our child, our family, and our purpose. What is Fragile X Syndrome? Fragile X is the most common inherited cause of i

There’s a moment at every community event when you realize something profound: you’re not alone. That moment happened for our family at this year’s Cruise-In for a Cause , but it wasn’t just about the cars, music, or sunshine. It was about the extraordinary connections we made with other families navigating life with Fragile X syndrome and related developmental disabilities. As we welcomed families to the event—parents, siblings, grandparents, and caregivers—we heard stories

When we first received Solomon’s diagnosis, our world shifted in ways we never expected. Learning that our child had Fragile X syndrome , a developmental disability that affects learning, communication, and daily life, was overwhelming. Fear, uncertainty, and questions about the future filled our days—and yet, even in that moment of vulnerability, we also felt a spark: a determination to do everything we could to support Solomon and families like ours. Solomon’s journey has b

When people ask about Solomon, one of the first things I mention is his therapies. Not because they define him—but because they support him. They help him communicate, regulate, move, and grow in ways that don’t always come naturally for a child with Fragile X syndrome. Therapy is part of our normal. Our weeks are built around appointments, routines, and small victories that might go unnoticed to others but mean everything to us. Speech Therapy Speech therapy has helped Solom