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Little Steps, Big Wins


When people ask about Solomon, one of the first things I mention is his therapies. Not because they define him—but because they support him. They help him communicate, regulate, move, and grow in ways that don’t always come naturally for a child with Fragile X syndrome.

Therapy is part of our normal. Our weeks are built around appointments, routines, and small victories that might go unnoticed to others but mean everything to us.

Speech Therapy

Speech therapy has helped Solomon find ways to express himself. Communication isn’t always verbal, and we’ve learned that connection comes in many forms—sounds, gestures, eye contact, and progress that happens slowly, then all at once. Every new word or attempt feels like a celebration.

Occupational Therapy

Occupational therapy has been huge for Solomon. Sensory regulation, fine motor skills, and daily tasks can be overwhelming for him, and OT helps bridge that gap. It gives him tools to better understand his body and his environment—and gives us strategies we can use at home every day.

Physical Therapy

Physical therapy helps Solomon build strength, balance, and confidence in his body. Things like climbing, running, and navigating uneven surfaces don’t come easily, but PT supports him in ways that allow him to participate more fully in play and daily life.

Why Therapy Matters to Our Family

Therapy isn’t a “fix.” It’s support. It’s someone meeting Solomon where he is and helping him move forward at his own pace. It’s also time, money, access, and advocacy—things not every family has easily.

We are incredibly aware of how fortunate we are to have access to these services, and how many families struggle to get what their children need. That reality is a big part of why our foundation exists.

Why We Share Solomon’s Journey

Solomon’s therapies are just one piece of his story, but they represent something bigger: the importance of early intervention, consistent support, and community. By sharing our experience, we hope to raise awareness and help other families feel less alone.

Every session, every small gain, every hard day and hopeful moment—this is what progress looks like for us.

And Solomon? He’s doing the best he can, every single day.

 
 
 

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